From 1 April 2015 we are part of Public Health England

We are still maintaining this website until further notice.

Web site privacy statement

Statement of Privacy

(Last updated: April 2005)

This statement applies only to the web site. SWCAR has a separate policy applying to collection of patient data.

Data Protection Page
SWCAR Code of Practice (PDF)

SWCAR is committed to protecting the privacy of your personal data.

Information about our organisation

Our organisation name is the South West Congenital Anomaly Register (SWCAR).

SWCAR is based in the UK.

Our principal activity is running a Register of Congenital Anomalies in the South West Region of the UK

Our privacy policy covers the web site: and

Browsing the website

You can access our web site without disclosing your personal data.

We do not use cookies on our Web site.

We do not automatically log personal data.

Data Collection

You can voluntarily send data about yourself to SWCAR using forms on the web site.

The enquiry form sends data to SWCAR staff in the UK.

The information you have entered on forms may be held in a database and will be handled by SWCAR staff only. Your personal details will only be used to process your enquiry and will not be passed to any other organisations.

We do not collect information about our visitors from other sources, such as public records or bodies, or private organisations.

Sharing your data

SWCAR does not share data you send to us via the web site.

Contact details

Our address is at the end of this page.

The data controller for SWCAR is the University of Bristol.

Privacy Compliance

We believe our data use to be compliant with the UK's Data Protection Act 1998.

Privacy Enquiries

If you have an enquiry or concern about our privacy policy, please contact Mrs Rosie Thompson, at the address below.